The Asthma Society of Canada
Canada has one of the highest incidences of asthma in the world - a total of three million
Canadians. Each year, 500 Canadian adults and 20 children die from asthma. Eighty per
cent of these deaths are preventable with education and good asthma management. The only national
registered charity that focuses solely and comprehensively on asthma education and research.
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The Arthritis Society
As the premiere source of current information about arthritis, we
help people take control of the disease. Our staff and volunteers are committed to supporting people with arthritis
to help them to better manage their disease.
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Australian Multicultural Mental Health Network
Established in 1995 as an initiative under the first National Mental Health Strategy. Research
has shown that people of culturally and linguistically diverse backgrounds under utilise or are
often unaware of the different mental health services available to them.
ATMHN is a national body that links State and Territory transcultural mental health centres
and networks with the goal of improving mental health outcomes for Australia’s diverse communities.
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Canadian Cancer Society
A national, community-based organization of volunteers,
whose mission is the eradication of cancer and the enhancement of the quality of life of people living
with cancer.
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Canadian Diabetes Association
With over 150 branches across the country, the CDA
is the largest non-governmental supporter of diabetes research, education and advocacy. Together
with its sections and councils, its employees and volunteers, the CDA plays
an invaluable role in the everyday lives of the over 2 million Canadians who live with diabetes.
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Centers for Disease Control & Prevention (US:CDC)
CDC serves as the national focus for developing and applying disease prevention and control,
environmental health, and health promotion and education activities designed to improve the health
of the people of the United States.
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Center for Research on Chronic Illness (North Carolina)
One of nine centers funded by the National Institute
of Nursing Research (NIH) to promote excellence in nursing research. The center includes
13 federally funded research projects, a pilot study program, and a range of services to advance
research on preventing and managing chronic illness in vulnerable people.
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Continuity of Care
Departmental and national initiatives in the care of the aged. Health and Aged Care. (Australia Dept. of Health)
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Cornucopia of Disability Information
CODI serves as a community resource for consumers and professionals
by providing disability information in a wide variety of areas. It consists of both an Internet Directory of Disability
Information and a repository of electronic disability documents, dating back to the early 1990s. Many of the
documents on CODI are publicly available nowhere else on the Internet.
International Resources, databases, directories, statistics, publications, organizations.
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Death & Dying, Bereavement
The Project on Death in America aims to understand and transform the culture
and experience of dying and bereavement through initiatives in research, scholarship, the humanities
and the arts, and to foster innovations in the provision of care, education, and public policy.
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Disabled People's Association of Singapore(DPA)
We conduct computer training for people with disabilities
to improve their skills and knowledge to contribute to the Republic. We are a Resource and Research,
Information and Communications Centre for the Handicapped (RRICCH).
From September 2002, DPA will be conducting E-Learning courses for people with disabilities. This
is the first of its kind in Singapore and Asia-Pacific region for people with disabilities.
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Epilepsy.com
Created to inform and empower patients
and families living with epilepsy. We offer a roadmap to understanding the epilepsies, how they touch people's
lives, and the options for treatment. To assist in following that roadmap, we also offer a forum for community
and the sharing of insights by patients and caregivers. We seek to enable more productive relationships with
caregivers, more effective care, and better lives for those with epilepsy.
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Heart & Stroke Foundation of BC
A reliable source of information on heart disease, stroke and healthy living.
Currently, the largest non-commercial source of funds for heart disease and stroke research in the country. Our mission -
to improve the health of Canadians by preventing and reducing disability and death from heart disease and stroke through
research, health promotion and advocacy.
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Healingwell.com - Guide to Diseases, Disorders & Chronic Illness
A thriving community and information resource for patients, caregivers,
and families coping with diseases, disorders and chronic illness. Our goal is simple....to help people on their way to
"healing well". To achieve this goal, HealingWell.com offers health resources and interactive tools that enable patient's
to take control of their illness and start the healing process.
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Handspeak
The exploration of imagery language and visual communication, cultures and arts
- Resources for the Deaf and Hearing Impaired
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Improving Chronic Illness Care (ICIC)
Focus is on transforming what is currently a reactive (USA) health care system into one that keeps its patients
as healthy as possible through planning, proven strategies and management.
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Integrated Approach to the Management of Pain
National Institute of Health's offering of this conference's proceedings. The conference brought together biomedical investigators,
physicians, dentists, psychologists, nurses, other health care professionals, and representatives of the public on May
19-21, 1986.
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Leukemia & Lymphoma Society
Is the fastest-growing voluntary health organization with a nationwide presence. The Society's mission
is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of
patients and their families. Since its founding in 1949, the Society has provided more than $240 million
for research specifically targeting blood-related cancers.
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MADNESS Mailing List (Mental health discussion list)
Dialogues to improve MH Care delivery and User-Controlled Alternatives. The Madness Group is a family of
electronic services for people who experience mood swings, fear, voices and visions. We
provide mutual support. We advocate. We are genuine grass roots unbeholden voices in
mental health policy and services.
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Mood Disorders Association of British Columbia (MDA)
Support and education for people with mood disorder, their families and friends as we build an understanding community.
People with a mood disorder... Unipolar (Depression), Bipolar (Manic Depression) or Panic Disorder are invited to contact the MDA.
We offer support and friendship for those with the illness and their support people.
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The National Cancer Institute of Canada
acts in concert with its partner the Canadian Cancer Society, and with the Terry Fox Foundation,
to provide support for cancer research and related programs undertaken at Canadian universities,
hospitals and other research institutions.
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National Down's Syndrome Society
Established in 1979 to ensure that all people with Down syndrome have the opportunity to achieve
their full potential in community life. Since that time, this not-for-profit organization has become the
largest non-governmental supporter of Down syndrome research in the United States. Today, NDSS
continues to increase public awareness about Down syndrome and discover its underlying causes through
research, education and advocacy.
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Rheumatoid Arthritis Information Network
Excellent educational and support site with information, the latest treatments, celebrity profiles, newsletter,
research findings, interactive discussion and self-care.
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Resources for the Disabled:
Many resources to help disabled people find employment and gain self sufficiency and self esteem.
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Schizophrenia.com
Discussions and chats, basic and in-depth information for people with schizophrenia (and their
families, co-workers). Personal experiences, medications, success stories, research, education.
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Women & AIDS
Great resource with research, personal experiences, articles, medical advice, organizations and hot topics.
Issues, Demographics, Prevention, Treatment
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